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- Progress Report 2012
Every new parent struggles finding time for themselves and each other. Imagine how much that is magnified for a couple looking after a very sick child.
Evelyne explains how Hospice at Home and respite stays make her and partner Thomas even better parents to Tuffel.
Michael's son Christopher is quickly growing from a young boy to a teenager. He is quarterly blind and quadriplegic, and as he changes so do his medical needs. Michael explains how Shooting Star CHASE helps not only Christopher, but the whole family to adjust to life.
Mike and James
Mike Hey is Head of Community and Challenge Events fundraising at Shooting Star CHASE. He was invited to our Guildford hospice to shadow the care team to find out what their working day is like. Here he met James, an eight year old boy who shares his passion for cricket, but whose life will never be the same following an accident when he was just eight months old.
The Barker family
Matthias was nine years old when he died at our Guildford hospice, Christopher's. The last months of his life were spent making special memories with his family. Here, Geraldine, Head of House at Christopher's tells their story, and how Steven Gerrard helped make the whole family's Christmas wish come true.
At just six months old Daisy was diagnosed with Costello Syndrome, a condition so rare that it only affects 1 in 28 million. Against all the odds, she is now seven years old and regularly visits both of our hospices, Shooting Star House and Christopher's.
Mia was born at 27 weeks and contracted an infection which led to significant brain damage. These days, with help from Shooting Star CHASE, Mia’s short breaks at our Hampton hospice Shooting Star House are designed to give Mia’s mum Hayley, some much needed rest.
Can you imagine having to uproot your family, and leave all your friends and relatives behind, to ensure that your sick child has a chance to live? That is exactly what Nilka and Susitha had to do, to help their son Thiranjaya.
Sophie is four years old. She is an extremely intelligent and sociable little girl, who loves playing with other children and playing in the garden. But unlike most children her age, Sophie has Spinal muscular atrophy, or SMA Type 2.
Daisy is just six years old but she has already had major heart surgery. To meet her, you would never know that she is one of very few people in the entire world with five major heart defects - all of which counteract the other one.
After two healthy children, David and Caroline were thrilled to welcome a new addition to their family, their baby boy Charlie. But straight away Caroline knew there was something seriously wrong with her new baby.
Up until the age of four years old, Mushtak and Roshan had no reason to believe their son would be anything other than normal. But when he started nursery, things began to change for their entire family.
Bev and Andy were overjoyed to welcome their first child Barney into the world in 2009 but at 6 months old Barney began experiencing seizures and was diagnosed with Lissencephaly.
Hollie is a typical seven year old girl. She loves make-up, animals and dreams of being a famous singer. But Hollie also has Jeune Syndrome, a form of dwarfism that affects her whole body, and restricts the growth and expansion of her lungs.