Hollie and sister

Families we support

Every new parent struggles finding time for themselves and each other. Imagine how much that is magnified for a couple looking after a very sick child. Evelyne explains how Hospice at Home and respite stays make her and Thomas even better parents.

James’ life has been a traumatic one. He was born a perfectly healthy boy – cute, cuddly and with everything developing as it should. When he was eight months old, James took a nasty tumble at his private nursery and banged his head.

The Barker family were referred to Shooting Star Chase in October 2011. Their eldest son Matthias, ten, had been receiving treatment for a tumour in his pelvis, but they had now reached the stage where there was no further curative treatment options.

Even before Daisy was born, her parents Andy and Stephanie knew that as soon as they had their fourth child, their lives were going to change forever.

Hollie is a typical seven year old girl – she loves make up, animals and dreams of being a famous singer. When Hollie was born all seemed well at first. Then, at six weeks old, she was diagnosed with Jeune Syndrome.