Families we support
Thanaa’s 11-year-old brother, Hussain, is profoundly disabled and needs 24/7 care. In her film she tell us what it’s like growing up with a sibling who has a life-limiting condition – and explains why she is tackling 877 steps for Shooting Star Chase.
16-year-old Jack has MECP2 duplication syndrome and severe epilepsy, which leaves him wheelchair-bound, unable to talk or feed himself. He also has a number of seizures every night. Single mum Sarah cares for Jack on her own but the support of Shooting Star Chase has helped her cope – and better still, feel part of a family.
14-year-old Elisha has type 2 spinal muscular atrophy (SMA), a disease that causes muscle weakness and progressive loss of movement. SMA is a genetic condition, but both parents must be carriers for it to be passed on and, even then, there is still only a 25% chance that the child will have SMA.
On top of the day-to-day struggles of caring for a seriously ill child, the Wheelers faced years of waiting for a diagnosis, accusations of abuse from healthcare professionals and homelessness. But thanks to their resilience, and with the support of Shooting Star Chase, the Wheelers haven’t let any challenge beat them.