Learn about research studies

We are often contacted by universities and asked to help out with their research studies. Please find the current opportunities below. There are four opportunities at present.

 

 

Research to find out about the symptom experience of children under the symptom management team, a joint project between The Royal Marsden NHS Foundation Trust and Shooting Star Chase.

Why is the research being carried out?

When children and young people are unwell, medical staff often ask about symptoms that are common but may not ask about less common symptoms that may be just as important. We want to find out what symptoms your child is experiencing and how this affects them.

Is it for me?

We would like to speak to parents and/or children aged between 2 and 18 years old who are receiving care from the symptom management team.

What is involved?

You and your child (if able) will be asked to complete a short questionnaire once every few weeks about how your child has been feeling and any symptoms they may have. This should take no more than 10-15 minutes to complete. Your child’s nurse will also be asked to complete the same questionnaire.

What should I do now?

If you would like to take part in the study, or would like more information, please contact our research nurse, Lucy Coombes by phone or email – 0208 661 3625, lucycoombes@nhs.net.

 

 

Grandparents wanted for a study by Kingston University and St. George’s University of London

Why get involved?

Grandparents often play a vital role through practical tasks and social support in the care of children who access hospice services. By sharing your experiences you can help to influence the experiences of families in the future.

Is it for me?

Grandparents whose grandchild currently utilises or has utilised the services of the hospice. You must speak fluent English.

What is involved?

If you decided to be involved in this study, you will be invited to a one off interview at a place and time to suit you which should last no more than 90 minutes. The interview will be recorded for accuracy, with your permission.

What should I do next?

To request more information please contact Lana Lowrey on 0208 4172854 or l.lowrey@sgul.kingston.ac.uk. She will then contact you to answer any further questions before you decide whether to proceed. You are free to withdraw from this study at any time.

 

New research to help find out more about the use of blended diets, by University College London

Why is the research being carried out?

This research is being carried out in order to understand more about why increasing numbers of families are opting to use blended tube feeds. It is also for us to understand how best to identify and support families who chose this form of feeding. The results will be used to help design a larger study to discover how widespread views are, and to help provide better support for families.

Why me?

UCL want to speak to parent/carers of children and young people aged between 1 year old and 25 years old to ask them about their decision to use blended diets and their overall experience.

What will I have to do?

You will be interviewed by the researcher to find out about your opinions and experiences. The interview will usually be either in your own home, in a location of your choice, or via Skype. The interview with the researcher will be audio-recorded to enable your responses to be studied.

What should I do now?

If you would like to take part in the study, or would like more information please contact the researcher, Anne Breaks, by phone or email – 07808 723798, or anne.breaks.14@ucl.ac.uk.

 

 

Neonatal Palliative Care in Children’s Hospice study by Kingston University and St. George’s University of London

Why is this research being carried out?

Neonatal palliative care is relatively new and little is known about how to best support parents who could potentially access hospice services to care for their baby. Our aim is to contribute to improving the care given to babies and their families living through this very difficult experience.

Who is participating in this study?

Parents who have accessed hospice services for end of life care of their babies are being invited to participate in interviews and we are asking them about their decision-making processes and experiences during this time. Families who meet the criteria are being informed about the study personally by designated members of the staff.

Hospice staff members are also being invited to take part in focus group discussions about their experiences and views in caring for newborn babies and supporting families.

Who is undertaking this study?

The study is being carried out by Dr Rosa Mendizabal-Espinosa. Rosa is a member of the research team led by Professor Jayne Price, an experienced children’s nurse and researcher working at Kingston University and St. George’s University London. As a team they are working with Shooting Star Chase.

Would you like to know more?

Please contact Rosa for more information, by phone or email – r.mendizabal-espinosa@sgul.kingston.ac.uk or 020 8417 9000 extension: 64685. Rosa’s mobile is 07393762513.

 

With each study listed there is a contact for that specific study, but if you have any general questions about research studies please contact Toni Menezes, Head of Practice Education & Quality: Toni.Menezes@shootingstarchase.org.uk.